|View from my new room of the Museum of Science & Industry. I would much rather be strong enough to be outside, versus being in the hospital.|
It was a more "exciting" day because my sister stopped by to visit me. I was so happy to see her because she was able to get my hair up in a ponytail for me since I can't reach the top or behind my head. My hair had been driving me nuts because it was getting caught in my halo so she solved the problem. You might not realize that it is very hard to brush your hair while in a halo, and it's even more difficult to get it into a ponytail because you have to slide the front hair under the bar and behind the screws above your ears and it involves much more than I ever realized. My sister has officially been dubbed the, "Halo Hairstylist".
|I have absolutely no idea what we were doing except being weird and she got me to smile.|
|A+ for her getting my hair up and off of my face and neck|
|Once my hair was up, I learned my incision was longer than I initially had anticipated. When my hair was down in the previous post, I didn't realize the incision went up higher. Surprise!|
|Me telling my parents how this thing is stupid and if somebody would find me a brace I would be able to walk without any assistance.|
|A quick "smile at the camera" as my parents and I were trying to walk all the way around the nurses station. This walker was a pain in the butt for me.|
|This picture is from Feb. 2013. If my arm would have been taped like this, it would have helped to get the drag of my arm off of my neck.|
I was on a mission this day. What's the mission you might ask? To get my left my arm in a sling because I was officially fed up that I was in a hospital and nobody had any idea of what to do to immobilize it. The pain over my left scapula was increasing, and it was making me cranky. With every other obstacle that has ever been put in my path, I think, and figure out a solution to get around it. So this is how it all played out. The nurse, as well as the physical and occupational therapists had left my room saying there wasn't anything they could do. I could understand the nurse not having too many ideas since that's not their area of training, but I was not pleased with the physical or occupational therapists. If they weren't going to think of a solution then I guess I would have to figure it out myself.
My mom and sister were with me that day. I remember standing up and saying, "That's it! We're going to be 'old time mountain women' and go back to the old days and make a sling". I told my mom and sister to take the sheet off of my bed because that's what we were going to use to make a sling to immobilize my arm. I knew we could make something that would go around my torso that would not put any pressure on the halo, and it would not put any pressure on my neck. It took maybe 5 minutes to make a sling and the problem was solved. It wasn't rocket science. This was the final product and it worked like a charm!
|Wala! Ladies & gentleman we made a sling out of a bed sheet which helped solve the problem and alleviate some of the scapular pain, as well as the added pain in my neck from my scapula (shoulder blade).|
|Walking unassisted! You should have seen the look on the nurses faces when they saw me out of my room without a walker, and with my arm in a sling made from a bed sheet. It was priceless!|
|Very fitting words that were right outside my hospital room. I did one lap around the nurses station and noticed these words when I got back to my room.|
"Put one foot in front of the other!"
|When you're post-op, one lap around the nurses station is exhausting.|
April 18, 2015 Post-Op Day 6 aka Discharged Home Day!
Yes, you will notice I am in the exact same clothes that I was in the day before. It takes a lot of effort to get changed and I didn't have the energy for it. If I were to change, that would mean I would have to take off the "sheet sling" we made the day prior, and my arm was in a relatively comfortable position. When you find those comfortable positions, you don't mess around. You take advantage of them for as long as you possibly can!
The day before, I told my parents, and Dr. F that I wanted to go home the next day. Dr. F told me there was no rush and I was allowed to stay longer if I wanted too. I was so uncomfortable at the hospital though. I knew I would be more comfortable at home in my recliner, and I wanted my dog Daisy. All I kept saying in the hospital from the moment I got out of surgery was that I wish Daisy were here. She helps keep me calm, and petting her is soothing; essentially, it's pet therapy.
My parents and I were hoping that I would be discharged in the morning since we were in Chicago, and we wanted to avoid rush hour traffic. It wasn't the end of the world, but I didn't get discharged until around 5:30-6:00 p.m. To those that aren't familiar with Chicago, that is rush hour hell with bumper to bumper traffic. Since we were at the hospital pretty much all day, it turned into a busy one.
Before being discharged, I had to pass the protocol from the physical therapists perspective. She came by in the afternoon. This was a new physical therapist and she was a hoot. She came by to make sure I could walk okay, and had me do stairs because we have stairs in our house. She was very nice. I liked her a lot. I passed my walking, and stairs test with flying colors. She was impressed that I was able to walk so easily with the halo. She told me most people are pretty wobbly, and have trouble finding their center of balance. I told her I've had a lot of surgery, and I've been in a lot of various braces that have had me lopsided and this forced me to get good balance; in that respect, all those previous surgeries prepared me for the halo. I didn't have a hard time learning how to walk or do stairs with the halo.
|She was funny; she couldn't get over my height|
|Going up the stairs|
|Coming down the stairs|
|My nurse and I.|
Later in the day, Dr. F stopped by with one of his associates. Once again, he told me that I could stay longer, and that he liked coming to visit me. I chuckled but told him I would be more comfortable at home and would be seeing him soon for post-op visits. While in my room he decided to take off the dressing that was applied over my incision. This was when I got a pretty good idea of what my incision looked like. Those white pieces of tape are called steri-strips. They will fall off on their own.
Final Question: Can I please take a picture with you because I get my picture taken with every doctor that has helped me? I think he was little shocked by this question but said, "Yes, here you can sit next to me on the couch." My mom went to take our picture but with the sun at our backs, you couldn't see our faces. So we had to stand instead, and he said, you're going to be taller than me if we stand. I told him I'll slouch down a little then.
|Dr. F & I|
|Home at last!|
Next post will be about some humorous hurdles and obstacles that I had to overcome now that I was home.
If there is anybody that has Ehlers-Danlos Syndrome (EDS), is in/was in a halo that would like to connect, please feel free to email me at firstname.lastname@example.org
You can follow me on Instagram at thetravelinghaloofhope