|I'm not saying that I had no pain in my|
body, but to have that horrid, sharp, stabbing,
neck pain gone was unbelievable
I'm not one to take selfies of myself, but that morning I felt a selfie was warranted. I wanted to take a picture of myself smiling because I can't remember the last time I woke up in the morning and thought I looked relatively good considering I just had the halo applied to my head the day prior. I was smiling ear to ear because I had less pain, there were no furrow lines between my eyebrows, and my doctor helped me. What could be better? Even though my gut feeling was that the halo was going to help, there is always that little part of you that worries and asks, "What if this doesn't work? What if I feel worse? What if I put myself through this all for nothing?" The fact that none of those worries occurred was big enough reason all in itself to smile!!
|So happy to be feeling well overall.|
When you live with chronic pain all over
your body, it is amazing how much better
you feel by getting rid of just one area of pain.
|Don't underestimate the baby steps|
You can't see them in the picture,
but there were people VERY close by to
help me if need be.
This was the next goal on my list. The nurses told me as long as somebody was with me, I was allowed to walk short distances. So my mom and dad came with me. My mom had the camera so she captured this moment of my dad and I.
|My dad and I walking the halls|
|Just smiling in the hallway. I didn't realize it|
at the time I grabbed these pants, but it says
STRENGTH on the outside of my left leg.
|I was sound asleep. It was the most comfortable that I could get.|
The plus of the halo, is your head doesn't fall forward when you
fall asleep. The down side is your mouth drops open a little bit :)
Later that afternoon I wanted to try sitting in the hospital chair. For me, I was more comfortable putting a pillow vertically behind my back so there was more cushion. Unfortunately these chairs didn't have high backs so I couldn't sit in them very long. When I was at home though I was able to re-position my pillows differently on the higher back chairs to make myself more comfortable.
|Thumbs up on the left just because it felt like the right thing to do. Picture on the right shows|
me able to raise my right shoulder in the air higher than it has gone since 2012 without
any person holding my head up (just the halo).
Some of you may be wondering how in the world we got that shirt off underneath my halo when it came time to change. My neurosurgeon, Dr. F went searching for a shirt of any kind on the operating room floor so I could put it on before the halo was applied. We didn't care what type of shirt it was. When I got home, and it was time to change, there was no way for me to get the scrub shirt off without my mom cutting it with scissors. In hindsight I should have taken a picture of the cut up blue scrub shirt.
At my appointment with my geneticist in March a couple of weeks before the halo application and then the fusion surgery, he warned me that people who do not have shoulder problems end up with really bad muscle spasms due to being fixed in a new position. He then said, "Since your shoulders are crap, the likelihood of this happening to you is quite high and you'll experience this worse than the average person." He then went on to tell me that I may require additional bracing for my shoulders, and I will need to be on muscle relaxers to try to tame the beast. He wasn't kidding about that, and was spot on. It has been a daily battle since I got the halo on.
If anybody has Ehlers-Danlos Syndrome, who was, or is in a halo and would like to connect, please email me at firstname.lastname@example.org
You can follow me on Instagram at thetravelinghaloofhope