How life is ironic:
It's ironic for me writing this post because it coincides exactly with where my life has been the past 2+ weeks. It's really weird writing it because it's like foreshadowing. Every concern that I had at the end of May was just confirmed exactly 18 days ago. So now you're probably wondering what happened at the end of May? I've been holding off on writing this post because I didn't know how everything was going to play out. I wasn't emotionally ready. In order for me to write these posts, I have to come to terms with everything and know the end result. Now that I know what happened, I can let you know what happened at the end of May.
Once I returned back home from Minnesota on May 16th from seeing Dr. E I slept a lot the next several days. There really isn't anything worth writing about. It would be like me writing about how paint dries on a wall; nobody wants to read about that. Why? IT'S BORING!
May 22, 2016
I was doing a bit better this day. My mom and I went to the nursing home to go have lunch and visit my grandpa. It was a nice day outside so we were able to have ourselves a nice little pinic on the patio. We started bringing this little portable radio that syncs to my phone and we play my grandpa's favorite types of music: Big Band, Judy Garland, Doris Day, Connie Francis, Frank Sinatra, Dean Martin...the list goes on. My grandpa isn't as conversational as he used to be so music is nice because it fills in the silence.
|My grandpa and I having our picnic|
It was a big day. It was the day that my custom cervicothoracic brace was getting made aka custom CTO brace. This is the brace that I'll go into once the halo brace is removed from my head.
Before heading to my appointment I had my mom help clean my torso. Apparently my dog Daisy felt it was necessary to help out too...or stand guard.
|Daisy keeping watch over me|
Now that I was clean and ready to go, my mom brought me to the orthotics building to have my new brace made. I had no idea what to expect. I had never had a brace like this made before so I had no clue what it would be like. I do know now it's like being made into a human mummy. Pictures explain better than words do so I put together a few collages to explain what's going on in each picture.
|Uncomfortable would be an understatement|
|This is what we call improvement; arm is at least closer to my side|
** Follow me on Instagram: https://www.instagram.com/thetravelinghaloofhope/
The more awareness about EDS, shoulder/scapular injuries, craniocervical, and cervical spine instability the better!! As always if you wish to communicate you can email me at firstname.lastname@example.org